2009 2008 2007 2006 2005 2004 2003 2002 2001 2000 1999 1998
Mayor’s
Disability Council
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Minutes
of the regular Mayor’s Disability council meeting
held on Friday, October 15, 1999
at San Francisco City Hall.
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MAYOR’S DISABILITY COUNCIL
MEMBERS PRESENT:
Sergio Alunan
Vincent Behan
Edward Evans
Viola Jackson
Michael Kwok
Frank Marone
Susan Mizner
Grayce Regan (Co-chair)
EXCUSED:
Damien Pickering
ABSENT:
August Longo
STAFF PRESENT:
Walter Park, Director, Mayor’s
Office on Disability
Richard Skaff, Deputy director,
Mayor’s Office on Disability
Carolyn Snipes, Office manager,
Mayor’s Office on Disability
The meeting was called to
order by the Co-chair, Grayce Regan at 1:06 p.m. She introduced the new appointee
to the MDC, Ms. Claudia Center, an employee of the Employment Law Center, and
served on the Board of the San Francisco Depressive and Manic-Depressive Association.
The agenda was approved. The minutes were approved as written. Director Park
introduced the new office manager for the Mayor’s Office on Disability, Ms.
Carolyn Snipes. He also pointed out to several handouts and documents available
for the public. As well, the telephone bridge number, 554-9632 was announced.
Director Park also announced that City Hall now had an accessible ATM, which
was the product of the work of Treasurer Susan Leal and her staff. This was
the first talking ATM in the entire country, and was located in the Treasurer’s
office, on the First floor, south side of City hall. Ms. Susan Mizner noted
that that days meeting was the first one devoted almost entirely to the issue
of access to City services by persons with mental disabilities, and that Directors,
Associate Directors, and staff from the various City departments were on hand
to make presentations. She added that since the meeting was focused on access
to said services by persons with mental disabilities, the discussion would necessarily
center on programmatic access, instead of physical access, and gave a brief
definition of the former.
Mr. Collins Muns, Acting
Mental Health Director, Department of Public Health, thanked the MDC for inviting
him and others to speak on the issue and services that his Department was providing.
He said that not too long ago, mental health services were provided only at
institution based programs, and these have now been moved from this model, for
good reasons. The first reason is that the service was not the best in San Francisco,
and the second reason was that there was a need to move these into community
based settings, which was to bring services to the people, instead of vice versa.
This would bring the services out to where the people lived, worked, or where
they were, thus making the services more accessible in general. The challenge
with which they were faced was that up to approximately 18 months ago, it was
a system that turned away more people than it served, since it was a target
based system that narrowly focused on the population it could serve, or who
could have access to the system. Fortunately, on April 1, 1998, the criteria
were changed and modified to the extent that service was now more accessible.
The remaining challenge was to provide services to those individuals who were
still not being reached. There was still much work to be done, with more flexibility
for the program, with more drop-in hours, more outreach service, more and better
training for staff, and how to engage populations that may not be as trusting
of mental health services as previous populations, etc. His Department was working
with several community groups to identify creative efforts in solving some of
the issues and problems. Mr. Muns said that he was looking forward toward the
progress on this work, and thought that over time, the additional progress seen
over the last 18 or so months will be added to. Dr. Marone asked if Mr. Muns
had any statistics on the numbers of persons in the population which was still
unreached for services. Mr. Muns said that his best guess on this was that probably
half of the people who really needed the services were being reached, and while
progress had been made, more work needed to be done to reach these people. He
added that a better job could be done if the resources and programming were
available. Ms. Regan asked if the resources were available, could the caseload
be doubled. Mr. Muns said no, because unfortunately there were no resources
available, to double their capacity. However, capacity was slowly being increased
with the help of their stakeholders and constituency. The Department was not
in a position to increase capacity by 100% at that point in time. Ms. Mizner
said that there was a wide agreement in providing flexibility and more drop-in
hours, and more outreach, and asked whether there was a timeline for this. Mr.
Muns said that some of the work on these had already started, with some of the
work to begin between the third or fourth quarters of this Fiscal Year, which
would continue through the next Fiscal Year, resources allowing. These would
include more street based treatment, greater mobile outreach in treatment, more
service integration, and more services in shelters in collaboration with community
based organizations, among others. Ms. Center inquired as to how many persons
were currently being served. Mr. Muns replied that approximately 20,000 unduplicated
cases, annually. Ms. Center further asked for a description of the eligibility
requirements which were recently changed. Mr. Muns said that up to 1 April 1998,
the eligibility criteria focused on target population that would define one
as seriously mentally ill in order to be able to access services. Under the
new criteria, anyone who applied for services would receive an evaluation, then
be linked for counseling, and/ or treatment, as may be required. Mr. Evans asked
what Mr. Muns and staff were doing to link up with community based organizations
to address the issues. Mr. Muns said that increased work with these organizations
was being done, because it also increased access to resources recently approved
by the Board of Supervisors, and it was important to work closely together with
these organizations, and hoped that community support would be sustained and
increased. Mr. Muns added that San Francisco had the highest rate of 5150 cases
per capita anywhere in California. There were many contributing factors to this,
and his Department would like to help people before they reached that level
of distress, or desperation. The 5150 state is so serious that one who is at
this stage of desperation is required to accept involuntary treatment, or forced
to take treatment and be transported to a facility. He added that the Department
would like to be able to help and intervene before that happens.
Mr. Will Lightbourne, Executive
Director of the Department of Human Services (DHS) briefly covered the major
program services of the Department. He said that one of the major program areas
was the Department of Family and children Services, which housed the child welfare,
protective services, home placement, etc. One of the reasons that can bring
children into these programs would be the mental illness of a parent or illness
on the part of the child. The DHS worked closely with the Department of Mental
Health children’s’ services program to do services for families while they are
intact in the community, as well as if post removal of a child, both to the
family and to the child. DHS was trying to emphasize services while they are
intact in the community, and are now working with some State and Federal waivers
so that some resources may be redirected. Historically, the resources became
available when the child was removed, not while the family was struggling to
maintain itself. Under the Adult Social Services program, there was the In-home
Support Services, which provided assistance with daily living home needs. Adult
Protective Services was a rapidly expanding program, which used to be a small
program in the State. With recent funding through legislation which then Senator
now Attorney General Lockyer carried, the services was now expanded. As part
of that expansion, DHS was currently building new capacities to be able to work
with dependent adults who, for age or any other reason, may need resolution
or advocacy on their behalf. In the traditional program area of Welfare, there
was now what was called the CalWorks program, successor to the former AFDC system,
in the context of welfare reform. One of the better provisions of the State
law to implement Federal Welfare Reform was the provision that mental health
services should be available as a condition for clients being required to participate
in the CalWorks program. Agreements throughout the Department of Mental Health
had been made with the community agencies so that mental health professionals
were present during all the CalWorks presentations for clients, as well as at
the various locations if that appeared to be a need or an issue. Some community
outreach workers, former recipients themselves have been engaged to do follow
up with those CalWorks participants who had been referred by mental health agencies,
and who had mental health issues, who had not been keeping appointments or made
the service connection effectively. There was a concern about the low take-up
rate of mental health services related to CalWorks statewide, although San Francisco
was relatively ahead of that. This was a developmental process as the participants’
comfort level with the program and support services built up, issues will be
disclosed whether they be mental illness, substance abuse, domestic violence
survivor issues, etc. these can then be referred for service and treatment.
Mr. Lightbourne said that the resources were available, and exceeded the utilization
rate at that point. In the County Adult Assistance Program, formerly known as
the General Assistance Program, one of the major program components for employable
adults was the PACE program, designed to parallel the CalWorks program with
the same contracts for mental health services, and on-site availability of professional
staff. It likewise was expected to unfold developmentally over time. Under the
SSI component of the assistance program, which is for persons who are awaiting
determination for SSI by the Social Security Administration, staff had been
specially trained to work with clients with long-term disabilities, and to work
with community advocates to help pursue SSI advocacy applications. Within the
CAP programs, there were accommodations made with special appointments for persons
who need them, including home appointments for eligibility determinations for
persons who were either home bound or may have phobias that make accessing program
locations problematic. Similar special arrangements can be made for the Food
Stamp program, and the entire matter of accessing this program was now under
revisit and study. With the increase in the move from cash assistance to working
but with low income, there will be ways of positioning access to the Food Stamp
program at locations, places, times, and environments that were useable and
desirable for special participants. The final component was the Homeless program,
some of which fall under either DHS or Department of Public Health. Mr. Lightbourne
said that there has been increasing work over time toward integration of activities
for the homeless between the DHS and DPH. Joint budget planning is being done
for the 2000-2001 Fiscal Year so that their services become mutually supportive.
The local Homeless Board had a report on accessibility issues for persons with
mental disabilities in the local shelters. DHS along with DPH was looking at
the Homeless Board’s recommendations to study ways to respond to these issues.
DHS and DPH were now in the design process for a Request for Proposal to go
out for increased mental health outreach coordination services that can be attached
to the service system. Mr. Behan inquired about share of cost in the In Home
Support Services System, and asked if this would be eliminated in the future.
Mr. Lightbourne responded that locally, the Department had been budgeted $100,000
to do a pilot project " patch" program to identify numbers of people
who are eligible for IHSS, but are not utilizing this because of the share of
cost issue. The study will look into " patching" people and services
together with the intention of demonstrating improved quality of life, etc.,
and potential of cost avoidance in terms of usage of other systems. The second
stage of Mr. Lightbourne’s answer was relative to the State budget cycle, where
there was lack of willingness to engage by the administration on several areas
of the IHSS program, on quality enhancement that would have allowed other counties
to do the same things that San Francisco had been doing for the past few years.
Unless there was some significant awareness raising with the State administration,
Mr. Lightbourne said that he was not overly optimistic that responses could
easily be secured at the State level. However, DHS was committed to working
with the IHSS Task Force on the Patch program so that it could be possible to
demonstrate that people who could afford to be on the program had measurable,
demonstrable improvements on their quality of life, with potential cost avoidance
and savings in other parts of the system. Mr. Behan also asked about the reduction
of hours for IHSS. Mr. Lightbourne said that the amount of hours attached to
participants in the program were based on medical practitioner’s assessment
of needs. During the last few years, artificial hourly caps on the allotted
hours had been removed, so that there would be no downward pressure on the hourly
allotments. DHS monitors the hourly patterns, versus statewide averages, to
make sure that there were no anomalies developing that needed fast attention.
Mr. Lightbourne encouraged persons with such concerns to call him at 557-6541.
Dr. Marone thanked Mr. Lightbourne for his presentation and asked about the
under-utilization of the CalWorks program, and what outreach was being performed
to address this issue. Mr. Lightbourne gave a brief history of the Welfare system,
with its transformation from a previously command and control system to a more
facilitative, cooperative, and problem solving one. That begged a certain lag
time in credibility, and the Department has had to demonstrate the new system
so that people can come to believe that it was a true thing. In terms of the
active ways to encourage the utilization of the system, and that it is a safe
thing to utilize, having the provision of service from outside non-governmental
agencies, on the DHS locations would be part of that. Additionally, professionals
will go to the training sites, which were non-governmental, to offer group work
services there. There may be reluctance to discuss domestic violence survivor,
substance, and mental health issues in an office setting within an agency that
was the child welfare agency, for example. There may be concern that this would
be information that could be potentially used against them in some other setting.
A lot of system design had been conducted with the advocate community. From
the beginning a sort of fire wall would be set up between the CalWorks program
and the Child Welfare Program, so that information cannot be migrated from one
program to another. Over time, when both systems build up their own credibility,
with the community, and seen as a problem solving resource, it may be possible
to reintegrate systems of service. At that point, realistically, people should
be given the assurance that information will not migrate. Dr. Marone asked a
follow-up question on the lag time in the change from a controlling to a facilitative
system, and what the lag time was in terms of staff adopting the new system,
in terms of how they communicate and work with the client. Mr. Lightbourne said
that this was a real issue, and one of the things the Department did in the
implementation of CalWorks was to create a new job classification of worker,
which people had to apply for, instead of being grandfathered in. Most of the
persons hired were from within because of their familiarity with the system,
from training and emphasis in the program. There was an attempt to emphasize
that this was a totally new system, and not simply an old system with a new
name. Contracts had also been established with community agencies to come on
site at all locations to be advocates for the clients, when necessary. If clients
did not feel that they were being treated respectfully, or that if they simply
were uncertain about their negotiating room, they could turn to someone outside
of the agency who could help solve the issue with staff.
Mr. Jim Stillwell, interim
Director of Substance Abuse Services, Department of Public Health said that
for four years, the system had been expanding all of its services due to the
Treatment on Demand initiative, passed by the Board of Supervisors in 1996.
The Department convened a council of experts in the field, community representatives,
client advocates, and clients themselves, to map out directions in their needs
for expansion of services. The motivation was the need for services and inadequate
supply of the same, and access problems, along with cultural competency issues,
were identified by the community during this discussion. Service access to clients
with significant mental health issues was a cultural competency issue. The council
backed projects specifically designed to help clients with many different problems,
but specifically clients with substance abuse and mental health problems. The
projects included increases in outpatient services, day treatment services,
women and family service, residential detoxification, and short term residential.
Additionally, two recently funded but not yet operational programs, were the
additional detoxification, and long term residential program. These have begun
to address the access issues, in the sense that they were designed to serve
persons with dual diagnoses, but may not perhaps address the question of whether
each client should have a choice of which program to enter. A recent policy
memorandum was signed that would create that kind of access across substance
abuse and mental health services. Planning and movement toward the integration
of substance abuse and mental health services was occurring, which will allow
easier access to services for clients of one area to another, addressing all
issues at one site. Substance abuse system was a traditional low cost system
which was a peer-based system without clinical credentials or specialized academic
training. It had a history of excluding clients with Psychotropic medications.
This issue was initially addressed by opening programs designed to service such
persons, with the plan that every program must have the capacity to open themselves
to that clientele, without prejudice. Planning for such changes have now begun
at the program level. Budget planning was also being conducted to ensure that
the substance abuse program would do well.
Ms. Jan Murphy, Administrator
for Primary Care, SF Department of Public Health, said that there area of expertise
and purview were the community health centers, as well as the primary care clinics,
and urgent care center at the San Francisco General Hospital. A teen health
center, and neighborhood health center, as well as some homeless shelters were
under their jurisdiction as well. She spoke on access to primary care by persons
with mental health issues, and said that the Department’s concept of primary
care was holistic in that it covered physical, mental health, substance abuse,
nutrition, public health nursing services, health education, and where possible,
addressing of the spiritual needs of the clients. The Department was interested
in developing a multi-disciplinary approach to the problems the clients were
beset with. There were about 75,000 unduplicated clients on the caseload at
that time, and staff saw a fair number of mentally disabled persons among these.
Many were referred by other agencies, shelters, and providers, in the City.
Many of the clients came for physical health services, but were later diagnosed
for mental health issues, and were then provided services on site, or were referred
to other locations for services. Ms. Murphy named some of the centers where
the programs were working well, such as the Maxine Hall Center in the Western
Addition, a partnership with the SF General Hospital Department of Psychiatry
Psycho-Social treatment program, Castro Mission Health Center, and others. What
was not working as well was the attempt to provide some primary care services
at mental health clinics, which was partially a function of what it took to
provide primary care, such as the equipment, hazardous waste disposal, and other
issues which needed to be addressed in order to establish a primary care site.
There was some success with programs involving the jail patient Department,
and referrals, was to provide direct scheduling with the primary care clinics,
where persons just discharged from jail were immediately given appointment slots
so that they can visit primary care facilities. This has been coordinated with
the emergency care Department, and was now being coordinated with the mental
health providers. It has been difficult for the Department to know how many
mental health patients were being served, since there was no connection with
the computers in that system, which is a function of both systems and confidentiality.
Dr. ---------- added the provider and medical perspective in the discussion.
He said that many of the primary care clinics saw a number of mental health
and substance abuse problems as regular clientele, and he gave the example of
the Maxine Hall Clinic in the Western Addition Neighborhood. Some 60% of the
patients at that facility had mental health, or substance abuse diagnoses, or
both. Many of the Department’s providers were familiar with mental health and
substance abuse. Most of the clients with such problems were treated by primary
care specialists, and not specialists in mental health or substance abuse simply
because the mental health and substance abuse systems do not have the capacity
to see all clients with such problems. Many, if not most of those clients end
up in the traditional medical health system, and those who were in the low income
or underserved populations will often end up in their Department’s system. At
his end, the trend in trying to provide mental health and substance abuse services
was to do this on site, in the primary care clinics, as opposed to referring
most or all patients to specialized mental health and substance abuse services.
The reason for this is that there are many clients who, once they become familiar
with their primary care clinics, will go there for services, but will become
resistant to going to other specialized service locations, for a variety of
reasons. The Department has a variety of pilot projects which do exactly this,
with a number of substance abuse counselors and mental health workers assigned
to various primary care clinics in the system. He believed that with more resources,
additional mental health and substance abuse services may be provided on site.
Mr. Lawrence Andrews, Administrator
of the Leased Housing Division, SF Housing Authority, (SFHA) thanked the MDC
for the opportunity to present information on what reasonable accommodations
the SF Housing Authority provided to persons with disabilities. He introduced
Mr. Duane Walker, Director of the Customer Service Department which provided
oversight to the public housing component. He said that with the Federal oversight
on the program, the SFHA’s direction was on confidentiality, and it undertook
not to distinguish between applicants under the program. With program delivery
however, outreach activities touched all areas regarding disabled individuals
in the City. The application process, when it was open, reached into the agencies
that served the disability community, to ensure that the individuals that were
served by these entities would also be served by the SFHA. With respect to the
participating landlords in the program, there were definite efforts to seek
out owners who were willing to rent to disabled persons. Additionally, best
efforts were made to make listings of said landlords/ properties so that disabled
individuals may be referred to these properties. One of the areas that was unique
to the program was the opportunity for staff to inspect that property. While
historically, the SFHA had looked at physical access, it has now focused on
what services could be provided for persons with mental disabilities. One of
these has been the project based assistance, which is rental assistance for
persons with developmental disabilities, under a contract which went to the
Aid to Retarded Citizens (ARC). Twenty units will be developed for persons with
Developmental Disabilities, who will live in a shared housing system, at 416
Bay Street, in San Francisco. This was the first time that the SFHA has entered
into a housing project of this nature, in that shared housing was not offered
to any other participants in any of the SFHA programs. It was felt that this
was a reasonable accommodation to study if shared housing could work for this
population, and the SFHA was confident that the project would succeed. Additionally,
the SFHA was recently awarded 75 housing vouchers, marked specifically for persons
with mental disabilities, and these will be available within the next 60 to
90 days. The vouchers will be available to participants in several community-based
organizations. It was felt that this was a great opportunity for the targeted
population for the services, which will cover some 100 units.
Mr. Bill Hirsch, of the
Mental Health Association, spoke on the work of the community which led to that
point. This began with discussions among community members about the City’s
lack of response to people with disabilities, and later, a lawsuit was filed
by certain individuals against the City for its failure to comply with the ADA.
In the resulting settlement, a consultant was hired to assess the City’s physical
and programmatic access. That day’s meeting was the first of its kind focused
on access to City programs for persons with mental illness, and he was glad
that Ms. Claudia Center was appointed to the MDC. Mr. Hirsch also expressed
his observations on ways City programs effectively precluded people with mental
health disabilities from accessing City services, and retaining the same, once
they have actually received these. He hoped to point out some of these specifics
during his presentation, for the City personnel and consultant to consider.
Mr. Hirsch said that one could not expect people who were sick not to act sick,
and for people with mental disabilities, there were very serious manifestations
of their illness which effectively precluded them from accessing services that
non-disabled persons may easily obtain. He gave an example of a person with
major depression, who essentially stayed in bed, and who could neither sleep
nor eat, and could not access a service by contacting the program via a telephone
number listed on a form. Conversely, that person may already have been connected
to the service, and will receive some other forms, but due to great difficulty
in concentrating, the person may just throw away the form without reading it.
He asked the city officials to think creatively on how to reach out to this
person, knowing that there was that type of disability to ensure that the service
becomes accessible to that individual. Mr. Hirsh said that he understood that
there were limitations on resources, but there was also a responsibility and
an obligation under the law to make reasonable accommodations to policies and
procedures. The criteria for accessing mental health services was for the most
part, based on the State’s medical necessity criteria. This required a showing
of a serious mental illness, and that your life was significantly impacted as
a result of that illness. Then, a showing of the existence of some type of treatment
which was available which could help that disorder. There was a narrow group
of people that were targeted, using that medical necessity criteria. The mental
health system budgeted its funds based on people’s inability to comply with
the program, which estimated a 50% non-compliance rate, which was the information
brought before the Board of Supervisors as a basis for the modest expansion
in services for persons with mental disabilities. Mr. Hirsch said that there
was a long way to go, and encouraged the MDC to listen to the other comments
that would follow. Ms. Regan said that a number of members of the MDI also worked
with clients, and were employees of Non-profit agencies, and were well aware
of the issues. She added that she personally worked on Section 8 issues, and
knew that it was inaccessible as currently structured. Ms. Regan said that the
system was inaccessible to persons with disabilities, and certainly for anyone
with any type of psychiatric disability, since the system caused confusion,
and she was prejudiced against it. Mr. Mike Wise, of the Consumer Family Task
force prefaced his presentation by stating that he had given the same recitation
three weeks previously at Golden Gate Park during another event for persons
with disabilities. He stated that he was a mental health services consumer,
and psychiatric survivor. He added that for many years, he had been lending
his aid and support to make the necessary changes in the treatment of persons
who were mentally ill. Mr. Wise said that it was up to persons like himself
to spread the seeds to make the necessary attitudinal changes in the public.
He was lucky to be able to access the public services that helped him through
his illness, despite the difficulty in overcoming a condition which was not
of his own making. What was most helpful was the consistent support and dedication
of the many persons in the mental health community. What was absent was the
feeling of being ignored, systematically neglected, and ultimately necessarily
expendable. Because he was important to others, he was given a second chance,
and he now wished to help others in the same situation, and to help these prove
to others that their lives have meaning and value. He said that lives were interconnected,
and each should be given the same quality of life. With the decreasing availability
of resources, desperation will be an increasing phenomenon, and no one would
be immune. Blaming the leaders was not the solution, who in the end will listen
and look to the consumer for solutions, and decisions that will make life better.
Mr. Wise added that the testimony will include problems, but also methods that
worked to help those who were suffering. He encouraged more work toward housing,
humane treatment, and decent respectful medical care for the disabled. Ms. rosemary
Dady, a staff Attorney with the San Francisco Neighborhood Legal Assistance
Foundation said that her agency provided free legal services to persons on low
income, in the areas of housing, domestic violence prevention, public benefits,
and health care access. She added that many of their clients had mental disabilities
and had sought services to access services in the county which they needed,
or if they were wrongfully terminated from the same. She cited the pertinent
section of the ADA relative to discrimination in the provision of services and
benefits to disabled persons. She added that an obligation existed whereby a
county had to ensure that application for, and retaining services was as easy
for a disabled person, as someone who was not disabled. This further meant that
the county’s rules should not disproportionately impact people with mental health
disabilities. Ms. Dady said that her agency had seen the result of the county’s
failure to follow the ADA mandate. She gave an example of a person with mental
illness, who received In-Home Support Services and could not fill out the form,
and nearly lost the service and housing. She cited similar problems with Medi-Cal,
food stamps, general Assistance, and other programs where people with mental
illness could not fill out forms due to the application forms and process being
too difficult to understand or cumbersome. For the same reasons, clients had
also been terminated from services. Ms. Dady also said that such persons needed
help from county workers, but were not getting it. Ms. Dady further said that
the paratransit office workers did not recognize mental health disabilities
as preventing one from using public transit. Further, her agency saw the difficulties
that clients faced in accessing and retaining services, and the lack of training
that county social, health, and other workers had in dealing with persons with
mental health disabilities, and the mandates of the ADA. She said that there
also was hostility from workers against persons with mental disabilities, and
problems resulted in the eligibility or recertification process. She urged the
MDC to consider the concerns seriously. Ms. Carol Paterson, a peer counselor
with the Independent Living, Resource Center, said she also worked on mental
health issues, among others. Ms. Paterson further commented on a list compiled
by the Coalition on Homelessness, which were: Long time waiting in line for
cash assistance. She gave herself as an example of a person with a psychiatric
disability who may encounter difficulties standing in line. This may trigger
certain adverse reactions or behavior, or make the mentally ill person simply
give up waiting, to return another time. 2. Disorientation to place and time,
as a result of the disability. Some persons with mental health issues may find
it difficult to go to new places, or even be fearful. She said that she was
a recipient of involuntary treatment, and as a result, was fearful of trying
to access any type of health services for many years. Experience with involuntary
treatment led many persons to become untrusting, fearful, or adversarial against
the system. IN the case of the 30-day long-term beds at the homeless shelters,
case managers were needed, and for persons with psychiatric disabilities, failure
to make the appointment with the case managers may cause the loss of the bed.
There were some mentally ill people who may need the bed, and not the case manager,
or vice versa. Ms. Paterson cited the case of a mentally ill woman who preferred
to live in her car, where she felt safe, instead of the shelter, where the atmosphere
was adversarial. She said that most Psychiatric disabilities were aggravated
by lack of sleep, and if a person with such disabilities sleep at a shelter,
the disability became worse. Such persons will need some type of privacy, such
as curtains, not just a mat in a crowded room. She suggested reasonable accommodations,
allowing pets, private soundproofed rooms to prevent agitation from outside
noise or persons. Regarding IHSS, she said that psychiatrically ill persons
can benefit from this service by having someone help organize or plan things,
such as going shopping since the lack of the ability to concentrate or disorientation
was one of the problems of those with such disabilities. She added that these
persons might need paratransit since they often are confused, or cannot cope
in crowded situations on the buses during rush hour. Ms. Paterson finally said
that over the past five to Seven years, the system had been reorganized several
times, and this had made access to services difficult. Instead of accessing
clinics where clients once went to, persons with mental illness often were now
referred to a toll-free number. The case of someone whose services were terminated
as a result was given. Ms. Eve Myer, Director of San Francisco Suicide Prevention
said that her agency received 220 calls per day, 72,000 calls per year, answered
by 150 community volunteers. The calls come from those who were beyond the radar
screen of the community, primarily because of the depths of their own disability.
She added that as a culture, mental and emotional pain was still unrecognized
in this country. Unfortunately, over $2 Millions were denied to the mental health
system last spring on the premise that half of the clients would not appear
for the interviews. Ms. Mayer said that this was social Darwinism at its worst.
As a member of the community base service network for the past 10years, she
had seen community and peer based services to be the last programs funded, and
first ones ended in every budget process. Such services are used by people who
will function when they can function, and can only function, when they can.
She recommended that the $2 Million is restored, and that treatment on demand
also is restored to the substance abuse programs of the city, and the funds
are directed to community based organizations. Ms. Regan asked a question on
the denial of Psychotropic drugs. Ms. Myer replied that this was done in 12
step groups, where the participants needed to be substance free, although this
has been changing recently, it was a problem for persons who have been dually
diagnosed. Ms. Shannon Coughlin, of the Committee for Health rights in the Americas,
and the Emergency Coalition to Save Public Health, addressed the issue of the
accessibility of out-patient pharmacy services at San Francisco General Hospital
to persons with mental illnesses. She stated further that this pharmacy was
used by thousands of persons in the City, who had no insurance, who were on
low income, General Assistance, MediCal, Medicare, homeless, substance abuse
clients, the elderly, and the mentally ill. Access to this service was hard
enough prior to the massive pharmacy budgetary cuts and policy changes implemented
by Dr. Mitch Katz early this year. Maneuvering the current system was now a
harrowing experience even for the healthiest person. She gave the process on
the budget cuts, and changes in policy that created difficulties for the clients.
The process of what a patient who could not pay, after waiting in line to drop
off the prescription was described. It was noted that the Board of supervisors
approved $200,000 to eliminate the point of payment service system for certain
persons who lived below the poverty level. She said that the system was unwieldy,
inaccessible, and how stressful the process was for anyone, especially those
with mental illness. Examples of clients encountering difficulty were given.
She asked the MDC to direct Dr. Katz to change the policy. Ms. Regan said that
she personally observed the situation, and the description given by the speaker
was not as severe as the actual problem was. She added that the number of persons
who had stopped taking their medications as a result of the system would eventually
cost more than the savings realized now. Ms. Regan said that this cost cutting
was the most shortsighted event that she had ever witnessed.
Mr. Rob Roth, Executive
Director of Deaf counseling and Referral Agency spoke on mental health services
to the Deaf. He said that the prevalence of mental illness in the deaf community
was the same as in the general population, but this problem was magnified by
the lack of communication, or its barriers to the hearing impaired. He gave
certain examples, such as mentally ill deaf persons who were unable to communicate
in a way they were used to, or who did not have English as a first language,
leading them to be frustrated and utter guttural noises, or raise their voices.
This will appear to the county worker as being adversarial or threatening. And
the client is terminated from service. Mr. Roth gave examples of certain agencies
that provided services to mentally ill deaf persons. He made several recommendations
to help resolve these problems in communication between the client and service
providers. There was a perception among the deaf that service was inaccessible
at government agencies, and service agencies on a walk-in basis. Staff assumed
that clients could simply be plugged into the system without realizing that
there is a communication barrier that stopped the clients from receiving the
services they needed. Mr. Roth concluded by saying that funding for agencies
that served mentally ill persons who were deaf or hearing-impaired was urgently
needed. The Chair called a ten-minute recess.
Mr. Evans noted that there
should have been some opportunity for the staff to respond since some of the
Department staff left during recess. Ms. Mizner said that she was sorry for
the scheduling of the speakers and staff, and in future meetings, there should
be public comments first, then have Department staff respond to these. Ms. Arnette
Watson, an advocate for people living in homeless shelters spoke on the difficulties
which she observed regarding persons with mental illness. One of the issues
was the need for case management for people who required the use of long term
beds at these facilities. This created a barrier for mentally disabled persons
because they would miss appointments, miss the 7 p.m. curfew, and will result
in termination of services. She said that case management should be voluntary,
and not mandated for persons to qualify for long term beds. She added that there
should be intensive training for all shelter staff for both physical and mental
disability issues. Recognizing the various types of physical and mental disabilities,
how to de-escalate tensions, and provide reasonable accommodations will go a
long way in providing access to the shelters. Further, the range of shelter
living conditions also presented problems. The physical layout of these facilities
precluded certain disabled persons from accessing them, particularly those who
had difficulty with congregate living conditions. They should be provided with
solitary, in congregate living conditions. Ms. Watson said that mental health
services should be available at the shelters, with necessary staff with sufficient
training on hand. Ms. Magdalena Soul said that she was thankful for the mayor’s
Office on Disability, and the Mayor’s Disability council, and appreciated the
community organizations’ comments, as well as those from the disabled persons.
She added that she was a person on low income with mental disabilities, who
was happy with the mental health services which she had received, as well as
the low cost she had been paying for her medications. Her concern was that she
had been unable to see her physicians or therapists more often, and how other
people similarly disabled were encountering this problem, and therefore had
difficulty accessing the system’s services. Ms. Soul said that she thought a
bigger budget would be able to solve this problem. Mr. Chris Miller asked that
the Mayor and the MDC vote against involuntary treatment. He said that this
took the client out of the family, and community, as well as removing certain
rights from the clients. Ms. Jane Rousseau, a long time care provider, and occupational
therapist, said that the mental health community was both fragmented, and under-funded.
She cited certain examples of the difficulties of clients in accessing mental
Health services that she had observed at the Homeless Advocacy Project. She
added that there was a growing number of clients who could not access services
due to environmental illnesses.
Mr. Al rose requested that
some photographs be placed on the television screen. The two photographs showed
were of women, some who were well dressed, and the other of a woman with a severe
physical injury to the jaw. Mr. Rose said that he was also a victim of such
violence twenty years ago, and that while there were some persons with mental
disabilities, there were also those who were mentally ill that could become
violent, and added a political statement. Ms. Regan then asked him to leave
the podium. Mr. Alan Pross introduced himself as a member of Senator Jackie
Speier’s staff, and spoke on his hope to help accomplish things for the disabled
at the State level through that work. He said that the Senator represented half
of San Francisco’s population, and that any issues, ideas, or recommendations
the MDC had for disability issues, Senator Speier would be glad to address these.
He wished to speak on paratransit issues, but the Chair requested that these
be discussed off record, since the focus of that meeting was on mental health
and service access. Ms. Mizner thanked all the persons who provided testimony,
and said that the MDC would work on the issues, and that there would be future
discussion on the subject.
OTHER MDC MEMBERS’ COMMENTS:
Mr. Evans addressed his
comments to the department heads who had left. He said that shelters and mental
health or substance abuse programs needed to be placed in neighborhoods that
were not already saturated with them. He observed that these were concentrated
in the Tenderloin, south of Market, and Mission districts, and while the programs
were necessary, there was no need to oversaturate particular neighborhoods with
the same.
COUNCIL CHAIR’S REPORT:
Ms. Regan said that she
was working with the Department of Justice trying to research and come up with
a definition of " Service animals." She said that she had a number
of clients who had legitimate problems but could not convince anyone that their
animals were service animals. She added that the problem was the Federal government
had never issued any clear definition of the term " service animal, with
virtually no case law, and whatever little she could find, referred only to
one type of animal in one place. She said that there was no overview, and was
asking the Department of Justice " to get a grip" on this. Ms. Regan
said that this was a very serious and interesting problem.
MAYOR’S OFFICE ON DISABILITY
STAFF REPORT:
Director Park said that
staff was now located at the new offices at 401 Van Ness Avenue, Rm. 300, San
Francisco 94102. He added that staff had a number of issues which were being
worked on, such as the Farmer’s Market on Alemany Boulevard, which had problems
regarding the parking where people in wheelchairs had to pass the back of the
cars, and there was to be a community meeting there on Saturday, October 23.
He also had a meeting with a representative from BOMA to speak to the MDC on
Building Code issues. Director Park said that notices of public meetings of
other agencies could be sent to the homes of MDC members, if they preferred,
or could be received at the new office address. Staff was also engaged in theater
issues, such as accessible seating and line of sight issues, with the State
of California, which Richard Skaff had been involved in. Additionally, a meeting
was held during the past month regarding Laguna Honda, and Long-Term Care issues
in general, which had begun a series of meetings between the disability community
and City staff. He said that this was a crucial and productive meeting which
was going to involve the MDC through the years.
Mr. Peter Margen, of Margen
and Associates gave an update of the work on the ADA Self-Evaluation and Transition
Plans. He said that his group had a pilot questionnaire which was going out
the following week to test 11 selected programs for testing. Second, a questionnaire
was to be sent out to the various Departments to identify what programs, services,
or activities they provided. He also introduced Mr. Paul church who was hired
to assist him in this work. Mr. Margen also reported that Logan Hopper and Associates
was working on the City Library system, and was surveying City libraries. The
two firms had agreed to report to the MDC on an alternating basis. He said that
they listened to the various presentations with intense interest. Ms. Center
asked if Mr. Margen noted the issues regarding the Pharmacy program. He replied
yes, and that once all the programs had been identified, each would be analyze.
Ms. Regan said that the pharmacy issue was " her thing" too.
ELECTION OF OFFICERS;
Ms. Regan said that decided
that she would be of better service to the MDC if she were not the Chair, and
declined the nomination. Ms. Mizner and Dr. Marone were nominated, and accepted.
There were no other nominations. Without objection, Ms. Mizner and Dr. Marone
were elected as Co-chairs. Mr. Alunan thanked Ms. Regan and Mr. Park for the
work they had done during their terms as MDC Co-chairs. There being no public
comments, the meeting adjourned at 4:00 p.m.